Please select a Route Map

SMA TYPE 1

SMA TYPE 1

SMA TYPE 2

SMA TYPE 2

SMA TYPE 3

SMA TYPE 3

ADULT ONSET SMA

ADULT ONSET SMA

SMA WITH RESPIRATORY DISTRESS (SMARD1)

SMA WITH RESPIRATORY DISTRESS (SMARD1)

How to use the Route Map website

We suggest that this website should be used in conjunction with information and support provided by the medical team supporting you. Information about Spinal Muscular Atrophy and the services available from Spinal Muscular Atrophy Support UK are also available on the SMA Support UK website www.smasupportuk.org.uk If there is any uncertainty about your diagnosis or that of your child, you may wish to clarify this with your doctor before using this website.

The website is divided into 5 areas, four different types of Spinal Muscular Atrophy (SMA) and Spinal Muscular Atrophy with Respiratory Distress (SMARD1) in recognition of the varying needs of people affected by these types of SMA. You are welcome to explore the individual areas but will need to return to the homepage before entering another area.

Within each area, information is organised under a number of headings including Daily Living and Health. Click on a heading to enter that section. Within each section there are a number of subsections covering a wide range of topics, just click on the one you are interested in reading more about. Some of the pages have contents lists where you can click on the heading you want and it will take you straight to that topic. When you have finished reading a section use the X in the top right hand corner of the window to close it. Click the section heading in the centre of the diagram to return to the main section headings.

Individual pages can be printed by following the instructions on screen. When following external links from this website, a new window will open. To return to the route map website, click on the X in the top right hand corner of the new window to close it, or click on the route map tab whilst leaving the new window open.

We hope parents and individuals with SMA will share this resource with family members and the health and social care professionals supporting them.

Please contact us if you have any difficulty using the route map: http://www.smasupportuk.org.uk/contact-support-services or phone 01789 267520.