Please select a Route Map

SMA TYPE 1

SMA TYPE 1

SMA TYPE 2

SMA TYPE 2

SMA TYPE 3

SMA TYPE 3

ADULT ONSET SMA

ADULT ONSET SMA

SMA WITH RESPIRATORY DISTRESS (SMARD1)

SMA WITH RESPIRATORY DISTRESS (SMARD1)

Welcome to the SMA Route Maps

Following diagnosis many families spend a significant amount of time and energy negotiating a complex maze of services. We hope these route maps will save some of that precious time and help to reduce the stress of finding your way.

Sources of information and support on the following topics can be found on our route maps: diagnosis; genetics; care planning; health; equipment; transport; housing; leisure activities and holidays; financial and legal; education; employment; emotional and social support.

You can also find information sheets about the Types and other aspects of Spinal Muscular Atrophy  and more about SMA Support UK's services at: http://www.smasupportuk.org.uk/information-support 

If you find any of the links are no longer working, if you think any information is no longer correct, or if you would like us to consider adding some information to the route maps please contact us: http://www.smasupportuk.org.uk/contact-support-services or phone: 01789 267520

 

Whilst every effort is made to ensure that the information in the route maps is complete, correct and up-to-date, this cannot be guaranteed and SMA Support UK shall not be liable whatsoever for any damages incurred as a result of its use. The route maps give examples of organisations, services and resources that have been recommended to us by people in the SMA community. These are not exhaustive lists and there may well be other possibilities. SMA Support UK does not necessarily endorse those that are included. To read SMA Support UK's full disclaimer: http://www.smasupportuk.org.uk/disclaimer-footer

 

 

 

In 2015 and 2016 3,022 people used these route maps which are collated and produced by SMA Support UK.

Work started in 2010 as part of the 'Route Maps for Rare Conditions' project facilitated by Genetic Alliance UK, funded by the then Department of Health in England.

Subsequently SMA Support UK has continued to develop other route maps and is still working on what is a major undertaking. Funding for this project comes from charitable donations. If you can help to secure the future of this work, please donate today: