Please select a Route Map

SMA TYPE 1

SMA TYPE 1

SMA TYPE 2

SMA TYPE 2

SMA TYPE 3

SMA TYPE 3

ADULT ONSET SMA

ADULT ONSET SMA

SMA WITH RESPIRATORY DISTRESS (SMARD1)

SMA WITH RESPIRATORY DISTRESS (SMARD1)

Welcome to the SMA Route Maps

Many people spend a significant amount time and energy finding their way around a complex maze of services. We hope these Route Maps will help to reduce the stress this can cause. They offer sources of information and support on many topics including: equipment, transport, housing; leisure activities and holidays; financial and legal matters; employment and social support.

For a number of reasons, some children who have SMA Type 1 may reach the physical milestone of being able to sit independently and have experiences more similar to children who have SMA Type 2. If this is the case, you may find it helpful to also look at the Route Map for SMA Type 2;  for example, if your child has SMA Type 1 and is soon to start school. As we update the information on these Route Maps and transfer it to the ‘Living with SMA’ section of our website, we aim to make relevant sections easier to find for everyone. In the meantime, if you cannot find the information you’re looking for, please contact us.

You can find information about other aspects of Spinal Muscular Atrophy here and more about SMA UK's services here.

SMA UK's full disclaimer: www.smauk.org.uk/disclaimer-footer

 

All information and links on these Route Maps are currently being reviewed and will then be transferred across to our main website section Living with SMA.

We aim to launch this in July 2019 and include a wide range of updated information, tips and suggestions to support you in your day-to-day life.

To support our work to do this, please: